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Archive for June, 2003

Off to Shake-A-Leg

It was not quite a year ago that I wrote updates to the website almost daily. Once I returned to the United States, however, I got caught up in the busy-ness of a new job and, later, having Karlton at home. There was so little time to write. But now the school year has ended, and Karlton is in Newport, RI attending the Shake-A-Leg camp. Once again I have time to breathe and to write. Perhaps as I recount anecdotes from the past year I can paint a picture of what it is like to live with someone who has a traumatic brain injury.

Shake-A-Leg began on Sunday, June 15th, 2003. Choy-Lang, Louis, and I helped Karlton unpack his bags, putting his possessions into the drawers and shelves in his dormitory room. The next day, he telephoned to ask if I knew where his sunglasses were. He was going sailing, and he needed his sunglasses. Unfortunately, I was not immediately available, and he ended up sailing without them. When we finally did talk, I suggested that he look in the top drawer of the chest of drawers. That was indeed where he found them.

This incident is frustratingly familiar. At home, I would put his mail or other items at his place at the kitchen table. He might sit there to eat a meal two or three times, never noticing the items until they were pointed out to him. Likewise, in the dorm he looked through all the drawers repeatedly. But he could not recognize his sunglasses until someone told him where to look for them.

Since November when he came to live with Louis and me, Karlton has gotten better at finding the things he is looking for. With time, he has established usual places for keeping things, and he knows to look in those places first. He also works (though inconsistently) to limit the clutter around him, especially on his bed and desk. So he now loses things less quickly and for shorter periods of time. But in the new environment of the Shake-A-Leg dorm, he returned to Square One again. That is, he had no sense of organization in this new room. Yet I am encouraged that he has called less frequently for help in finding things. He is apparently developing that sense of organization much more quickly this time than he did in November.

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I apologize to all the readership that have awaited a fresh update. It seems time passes at a rate so fast that I often cannot keep up. Compared to before, my life has become much busier.

In January I learned of a local rugby club, and since then I have been volunteering as assistant rugby coach. Because I don’t yet have any formal training as a coach, I don’t hold specific duties. But I attend practices regularly and help familiarize new players with the sport. We have had many games, some as far away as Long Island, New York and Worcester and Springfield, Massachusetts as well as ones closer to home. I am fortunate to be linked to a good team, as we are a fairly successful and experienced club. Our record is respectable albeit not perfect, so there are aspects of the sport that I can often teach to new players.

Meanwhile, I attend therapy three days a week at the Sargent Rehabilitation Center in Warwick. My special focus is on cognitive therapy, but I am also getting support from occupational and physical therapists. In response to my interest in foreign language instruction, the director created a teaching opportunity for me. I am teaching beginning Spanish to a handful of clients and staff. Our lessons are informal with only a workbook as a guide. Lessons include conversation, grammar, reading, and writing. It’s a challenge for both my students and me.

On a special note, I wish to send out a thank you to all those involved in assisting me to reach my goal to attend the Shake-A-Leg Body Awareness Therapy Program this summer. Your support has overwhelmed me. I received donations of all sizes, and together they covered the fee that the therapy program charges. I am so very appreciative. Your continued encouragement has made this herculean task possible. Thank you to each supporter and contributor. The program begins tomorrow.

I thank you from the bottom of my heart.

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